Participant Identification:
A quality improvement initiative was implemented amongst a cohort of
adult SCD patients previously treated at Children’s Hospital Los Angeles
(CHLA) identified through the utilization of the hematology section
database. All patients with the diagnosis of SCD that were over 21 years
of age and had not had a medical visit at CHLA within the prior 12
months were eligible to participate. Participants were included
regardless of current place of residence or current healthcare provider.
IRB approval was obtained to allow for distribution of the information
collected.