Results:
There were 140 patients with SCD identified in the hematology database
that met the initial criteria for this survey. Of those patients, 93
patients could not be reached, 3 were too ill at the time to
participate, 3 had a prior bone marrow transplant, and 7 patients were
expired. A total of 34 potential participants agreed to participate in
the survey. Three subjects were excluded, two because they only had a
pediatric hematology provider at the time of the survey and one was
later determined to have misinterpreted the survey. These data were
removed considering it would potentially skew the results. Table 1
demonstrates the characteristics of the participants of this survey.