Procedures
The screening protocol was developed as a clinical program by the
authors, which include a pediatric psychologist, two pediatric
neuropsychologists, a pediatric hematologist, and a clinical
psychometrist. This associated study was approved by the Institutional
Review Board and appropriate informed consent and assent were obtained
prior to study enrollment. Patients completed the screening program
regardless of study participation. The psychologist completed the
semi-structured interview with the patient’s caregiver while the
clinical psychometrist administered the complete battery of
neurocognitive assessments to the patient.